Monday, August 26, 2013

A long time coming…



Oh no, I’ve fell into the pit of neglecting my blog. If anyone knows me, usually, my blogs are insight toward a subject I feel lead to write about concerning a topic God has given me. Not that this is any different, however, the following blog will be a little more personal and not so structured.

This morning consisted of a picture many families are familiar with as an attempt is made to avoid the snooze button and roll from the comfort of a blaring fan and cozy covers with the task of awakening the cubs. My first bear to stir is Autumn. The fact that she isn't a morning person doesn't even begin to describe the adventure presented by each morning. She is a limp body of Jell-O while I spray through the crazy curls and use a comb to tame any strands possibly with full knowledge the mess will creep back around three in the afternoon.  My second bear it quite familiar with crocodile rolls and screeching while changing the diaper. Nevertheless, we make it through our morning routine and crawl into the vehicle so taxi-Mom can transport eldest bear, Autumn, to school.

While scurrying to her seat today, Autumn informed me of a message I had given her the night before. She told me that Jesus wants everyone to be nice (kind) to each other. This is what I had told her in light of her and her sister screaming and fighting in the car ride home from church. I was filled with the joy with my daughter grasping a very valuable concept, and it was at this moment I stopped and had one of those flash back moments. A flash back to all the struggles we have been through together with Autumn in several areas of life.

I don’t recall ever mentioning this on my blog, so some may know and others not, but Autumn has been diagnosed with a couple of conditions which create difficulties. And unless you have lived with us, it is sometimes hard to understand what a label might mean for us. After years of good moments and rough ones, this label Autumn has is now just a big testimony to what God can do and change.

You see, Autumn has an anxiety disorder called Selective Mutism, and she struggles daily with Sensory Integration Dysfunction. While these words are foreign to many, they have been a motivation jumping board for us to send us in a good direction.

Dealing with Autumn and who she is with these two aspects of her personality is a journey, one without a clear destination at this point. Though, we are thrilled as we have a magnifying glass on the progress. We give God glory for such changes we see even when it may seem very small. One big change that has manifested throughout the last several years is her verbal capabilities in a school setting. 

When she was 2 and half years old, we placed her in a daycare while I worked full time. She spent six months in one facility and never spoke a word to anyone. She was getting hurt and the teachers bypassed her since she was so quiet. Round 2 took place at another daycare facility for 6 months where she only spoke a couple of words very quietly to her peers when she felt no one was looking or listening. A year passed where she stayed in my care with her sister, and then when I went back to work this last time we were able to place her in a private school setting at age 4. She did remarkably well speaking after about 4 months, but still struggled. She had her limitations and continued to refuse verbal responses to most questions, especially when they pertained to education type material.

What’s so amazing is comparing what she was so long ago to where she is now. Last week she began her first week in a pre-K program (Yes, we let her have another year of pre-K instead of starting Kindergarten early according to her birthday). The first day when she jumped in the vehicle after school, I asked her and her teacher if she had ate anything because with her anxiety sometimes she won’t eat in front of others or in loud crowded areas. The teacher told me she had eaten a cheese stick and yogurt. Autumn looked at the teacher and spouted off that she had ate a banana also. To any other parent, this simple interaction would have come and gone with little regard.

Not for me. I was doing a touchdown dance inside. Not only had she ate her food, which is a huge hurdle for her, but she has just spoken out loud to her teacher on the very first day of school.

Since that day, her teachers have informed me that she speaks openly with them in small group settings and has been very outgoing. We have not had any problems with her eating her lunches at school. I can’t even begin to explain how big of an accomplishment this is for her in the school setting.

As you can tell, this was not an overnight accomplishment either. As parents we have had lots of prayer time and recently, had the privilege of traveling to Chicago for a weeklong camp where counselors worked one-on-one with Autumn in a school setting to face her fears and teach her to replace her fear with brave. While she was being worked with, Brandon and I were in the parent meetings soaking in as much as humanly possible from the psychologist and the parents of other children with similar issues.

I just want to stop here and say, it was so great to see that there were other parents in the same boat with us. It was beginning to feel very lonely with the criticism we have faced as parents. Sure, there are those who believe Autumn is young and her behavior linked to these diagnosis is only a stage, and yes, we could have went on some elaborate vacation with the money required for this camp, but when she spoke to her teacher on the first day of school, it was priceless.

It would take me all day to describe what we were faced with in the past and how different life with Autumn is now. Sure, we still face daily nail-biting frustrations with parenting a child like Autumn where sensory processing is a task in itself, but those few successes along the way and the tiniest of miracles we see are fuel to get us further along in our journey.


Autumn is precious with purpose, and right now, I’m convinced that purpose is for Brandon and I to become the parents God intended us to be for these cubs and any in the future.